Tuesday, February 10, 2015

You Can Do Anything Despite Sickle Cell Disease

I have a new hero and his name is Billy Garrett, Jr., and he's proving that we can do whatever we put our minds to.

He proves this on DuPaul University basketball court every week. He's my hero because he is an overcomer and refuses to let Sickle Cell stop him from achieving his goals. Check out Billy's inspiring story and don't forget his name Billy Garrett, Jr. 

Sunday, January 4, 2015

New Year - New Sickle Cell Education Committment


 Education is Critical 

Advocacy is Essential            Ignorance is Unacceptable 

We are Overcomers




See what Sickle Cell Warriors are doing in the USA that got the President's attention

My theme song for 2015 
   

Wednesday, December 10, 2014

American Society of Hematology - Sickle Cell Awareness



The American Society of Hematology had its annual meeting in San Francisco, Ca this past week.

Sickle cell disease was on the agenda and Dr. Dubaun gave an account of our struggles during his  Ernest Beutler Lecture Series presentation.

Take a look at the images of the people who help us live.

Flicker images here.


Sunday, November 30, 2014

Sickle Cell & Bioethics - What is it?


At the Johns Hopkins Berman Institute of Bioethics there is a vision of hope.

Specific to Sickle Cell, there is the VISION OF HOPE: INTEGRATION OF PALLIATIVE CARE IN CHRONIC PEDIATRIC DISEASE


The Vision of Hope Project builds on the curriculum developed by the Initiative for Pediatric Palliative Care (IPPC) to help facilitate the learning of practices in providing comprehensive and integrated care for adolescents and their families.

What - originally piloted in a 2.5 day retreat-style and subsequent 60-90-minute in-service trainings

Where - at selected children’s hospitals throughout the eastern US.

Why - a holistic interdisciplinary model of care that incorporates emotional, spiritual, developmental, and physical dimensionsotional, spiritual, developmental, and physical dimensions.