Tuesday, February 10, 2015
I have a new hero and his name is Billy Garrett, Jr., and he's proving that we can do whatever we put our minds to.
He proves this on DuPaul University basketball court every week. He's my hero because he is an overcomer and refuses to let Sickle Cell stop him from achieving his goals. Check out Billy's inspiring story and don't forget his name Billy Garrett, Jr.
Saturday, January 17, 2015
Sunday, January 4, 2015
Education is Critical
Advocacy is Essential Ignorance is Unacceptable
We are Overcomers
See what Sickle Cell Warriors are doing in the USA that got the President's attention.
My theme song for 2015
Wednesday, December 10, 2014
The American Society of Hematology had its annual meeting in San Francisco, Ca this past week.
Sickle cell disease was on the agenda and Dr. Dubaun gave an account of our struggles during his Ernest Beutler Lecture Series presentation.
Take a look at the images of the people who help us live.
Flicker images here.
Sunday, November 30, 2014
At the Johns Hopkins Berman Institute of Bioethics there is a vision of hope.
Specific to Sickle Cell, there is the VISION OF HOPE: INTEGRATION OF PALLIATIVE CARE IN CHRONIC PEDIATRIC DISEASE
What - originally piloted in a 2.5 day retreat-style and subsequent 60-90-minute in-service trainings
Where - at selected children’s hospitals throughout the eastern US.
Why - a holistic interdisciplinary model of care that incorporates emotional, spiritual, developmental, and physical dimensionsotional, spiritual, developmental, and physical dimensions.